Wednesday, August 31, 2011

My "Hand"

Back in March my blood sugar went low.  Too low.  My husband came home from the office to get a piece of paper and noticed the baby crying in his crib (not like me to let the little guy howl).  He went looking for me and found me, unconscious, on our bed.  He tried to give me honey hoping it would revive me (it usually does, as well as making me puke because I can't stand the taste of it).  Nothing.  He also tried to give me milk (which always shoots my sugar up), but I started to choke on it because of how low I was.  He called 911 because we didn't have a glucagon shot in the fridge (my mistake on not refilling it).  EMS came, as well as police and fire trucks (apparently nothing ever happens here in Wylie, Texas).  EMS gives a new form of glucose now.  Years ago they just gave us glucagon, but now its an IV in your hand with a sugar solution.  He put the syringe in my right hand.  Before long I started to come around.  Once my consciousness started to come back they tested my glucose: 12.  Who KNOWS how low I was before they got there.  I do believe I hold the record for lowest blood sugar ever.  Even my Doctor and Nurse had never heard of a sugar that low.  Not something to be proud of, but when you have this stupid  disease, these sorts of things kind of make you giggle when you look back on them.

I didn't need to go to the emergency room because I had regained consciousness and I promised to eat.  I kept my word.  I ate, rested, then went to bed that night.  The next morning I was surprised when I couldn't get my rings off my right hand.  I never take them off, but they were tingly feeling and I assumed they were just a bit swollen because of the needle yesterday.  Throughout the day my hand started to turn a reddish purple color and really began to swell.  I was using it as much as I could, but by the end of the day I couldn't open or close my hand at all.  Nick took me to a local emergency room that isn't attached to a hospital, its a nice little ER in our community.  The Doctor looked at my hand and said "I can't treat you here, you need to go straight to a big hospitals ER."  He said it looked like I had blood poisoning in my hand and suggested in-hospital IV fluid to help with it.  So we get back in the car and go to Presby of Plano (the hospital we really like).  The doctor there says I do have blood poisoning and it will take WEEKS to heal.  In the meantime, do not use my hand (HELLO, I HAVE A BABY!), and to keep it raised with hot compresses on it.  I would have thought ice, but no, hot compresses.  It would help circulate the blood.  I also got a couple prescriptions to help with the infection.  The Doctor drew a line to where the infection was and told me to come back if the infection (which was a reddness on the skin) grew any more.

Yes, these are both of my hands...Ew!

To make an already long story a bit shorter....here's the ending of the story:
*I couldn't use my hand at all for over a week.
*Could not open or close my fingers at all.
*It felt like my fingers were going to blow up because of how swollen  they were.
*The Dr was right; it took weeks to heal properly
*It is now August and I still get a sore, swollen hand when I'm in the heat outside or if I am dehydrated at all.
*I've tried to find a Doctor to help, but no doctor knows which kind of Doctor to send me too...

26

Want to know what that number stands for?  26 is the number of times it  took me today to draw blood while trying to test my blood sugar.  This is getting ridiculous.  You would think my fingers were hard and caloused but they aren't!  My skin is soft on my fingers.  I press hard enough it just won't break the skin anymore.  It makes me not want to check my sugar because I can't just pick my finger and call it done.  I have to fight it over and over trying to get blood.  It's never been this bad and I'm way beyond frustrated.

My Overprotective Parents

Growing up I hated it.  I hated that I wasn't allowed to spent the night at friends houses.  I wasn't allowed to go to the houses of people that my parents didn't know their parents well.  I never had a baby-sitter, and that made me mad too.  I always had to stop playing outside to check my blood-sugars.  I couldn't skip a snack, even if I wasn't hungry.  Or the opposite...I was hungry but could only eat something super small, with barely any calories (like a piece of celery).  I hated that I had to check my blood-sugars at every single meal.  I hated that my parents watched my every move.  I absolutely hated it.

Then I grew up.  And I became a Mom myself.  And I know now why they did it.  And I would be the exact same way if either of my children (heaven forbid) ever became diabetic.

It's true.  I wasn't allowed to spend the night at friends houses.  Growing up it was an uncomfortable subject for my parents and I because all the kids were having sleep-overs, but I wasn't allowed to go.  I would go for the evening, and then they would pick me up at bedtime.  I thought they were being silly and mean, they were just terrified that something would happen with my blood-sugars and nobody would know what to do.  They were right.  When I was in high school I had a really close friend Kristin.  My Dad bought a Harley Davidson and Kristin's Mom wanted to see it.  So Dad and I drove to her house to show her Mom.  Two days later I was ecstatic to spend the night at Kristin's.  In the middle of the night Kristin woke up to me convulsing.  She got her Mom who called my parents.  Luckily for showing the motorcycle to them two days before, Dad knew exactly where Kristin lived.  It wasn't in our normal neighborhood and he would have never found it otherwise.  So ya, I understand why they never wanted me to spend the night away from home.   (Parents 1, Krista 0)

When I a toddler both of my parents worked.  My Dad was an engineer for Bell Canada, and my Mom had a great job at the Bank of Canada.  The day I was diagnosed Mom quit her job.  Her boss told her to take all the time she needed to get my diabetes figured out, but she simply said she would not be coming back.  The second I was diagnosed was like a dark cloud was put over my parents heads and it never truly lifted or left.  They would not trust me to be in anyone else's care.  One of them was always with me.  That meant no date nights, no Christmas parties, no social events, no movies, nothing.  In return, that meant no baby-sitters for me.  All of my friends had baby-sitters.  Not me.  I had my same routine as usual.  Bedtime, on-time, every single night.  When I was about 10 we had my grandmother watch us (my brother and I).  It is the only time I can ever remember having someone other than my parents in charge of us.  She watched us at our family cottage.  My blood sugars were always on tight control...but surprise, I went low.  The ONE time my Granny watched us and I went low.  Sigh, Parents 2, Krista 0.

Growing up we had a family cottage.  It had the most beautiful lake at the back with crystal blue water.  We had a boat dock from the land that went into the water.  The water was so deep that if you ran to the end of the dock and jumped off, you couldn't touch the bottom!  We spent HOURS swimming.  There were no weeds on our end of the lake, so we could swim from one side of the lake to the other.  One of us would row the boat for safety, while he other person swam.  I did most of the swimming because I loved it, while my brother did the paddling because he loved the boat.  I would always have to get out and go inside to test my sugar and have a snack.  To this day I can still hear my mom saying "You've been out here a long time.  Get something to eat before you go low."  It made me so angry to have to get out of the water, go inside, eat, and check myself because I would be half dry by the time I was done.  I wouldn't want to go back in the water once I was dried off, so ya, this upset me.  The fact that I never drowned because mom always pulled me out to refuel means Parents 3, Krista 0.

I was diagnosed with diabetes almost 26 years ago.  Things were SO different back then.  I'll write a blog soon about the way things were then, but for now, lets just say we had to eat breakfast, snack, lunch, snack, dinner, bedtime snack all at the exact time each day.  Yup, breakfast was always at the same time.  It didn't matter if it was Saturday, a holiday, a school day, or on vacation.  Then we had to have 3 snacks to keep up with our activities.  Dinner was always around 5:30.  No, I take that back.  Dinner was AT 5:30, on the dot, every night   It makes me giggle to hear people these days eating dinner at 7:30 or 8:00 at night.  It makes me think "When do you put your kids to bed?"  Bedtime for us was 8:00 every night, so bedtime snack was about 7:30.  That's the way life was.  Luckily for us, Mom no longer worked, so we had a home cooked, real meal every single night.  We NEVER ever ate out.  When I say never, I mean never.  My brother Brian and I would get excited about our family vacations that were car trips (ever 3 years or so) because we would eat McDonald's on the drive.  We might, maybe, have eaten out twice a year.  It never happened.  Guess who I try and be like now though with my families meals?  My mom.  Parents 4, Krista 0.

When I was younger, my parents kept all of my diabetes supplies (test strips, meter, insulin) in the kitchen.  The kitchen was where we always were so that's where we kept it all.  While Mom would be serving food or setting the table, Dad was measuring my insulin, examining my book of bloodsugars (he was the king of adjusting insulin levels.  He knew exactly how much to switch and when to do it), or watching me check my sugar.  I couldn't get away from it.  If it wouldn't have been so "in my face" I probably wouldn't have done it.  Actually, I know I wouldn't have.  In college I kept all of my diabetes things in my bedroom.  I lived in the kitchen and living room.  I'll let you imagine how well I kept control of my diabetes care.  Parents 5, Krista 0.

Well, that was depressing.  I hate saying they were right!  ;)

How I Became a Diabetic

A few months ago I created a family blog.  Then..I created a recipe blog.  Finally I'm making a blog about diabetes.  I didn't even know there was such a thing until I read someone else's a few minutes ago!  I'm a bit of an old pro at this diabetes thing; I've had it forever, but am still learning a whole lot about it!  Lets go back a bit, shall we?

I was born on November 18, 1983 in Ottawa, Ontario, Canada.

In September 1985 I was a 21 month old toddler sleeping in my crib.  My parents awoke to the sound of what they describe as "a hurt animal in the wild."  We didn't have any pets, and I was the only person in the house other than them so it must be the baby they thought.  It was.  Mom and Dad said I sounded like a sick animal moaning and crying in my sleep, in the middle of the night.  They rushed me to the emergency room at CHEO (the kids hospital in Ottawa) where Doctor's begin doing test after test.  I was sweaty, diapers were soaked in urine faster than they usually filled up, barely conscious, and quite unresponsive.  Dad started doing research of his own and suggested to the Doctor that I be tested for diabetes.  The Doctor asked if our family had a history of diabetes and my Dad said no.  So naturally the Doctor said that is not what was wrong and continued doing his own tests of what he thought was the issue.

Let me take a step back for a moment...I was recovering from Pneumonia.  Is this relevant?  Yes and no.  I'll explain in a few minutes.

As the story goes, a children's specialist from India came to the hospital a few days later to see how the hospital worked and she was sent into my room.  The Doctor did not speak English but had a translator.  Her translator informed my parents that her brother had been a victim of the recent plane crash that killed all the passengers (Air India Flight 182 I believe it was).  This is the extent of information we know about this Doctor.  No I lied, we also know that she diagnosed me, on the spot, as a Type 1 Diabetic.

It was my Nanny's birthday too...the day they diagnosed me.  What a present, huh?

Within the next few days my parents were taught how to take my blood sugar levels, administer and draw up insulin, and signs to look for (for high and low blood sugars).  They still used oranges to teach my parents how to give injections back then...from posts I've seen on other people's wall they still use that technique!  My mom is TERRIFIED of blood so when she would give me my needles, it was always in my behind...with her eyes closed.  She did it though, pretty proud of that girl!

Back to the pneumonia.  The doctors said that my pneumonia had mutated to diabetes.  I grew up believing that.  So that's my story.  I got diabetes from Pneumonia.